This past Wednesday I took Mila in for her first post treatment scans. She received an ultrasound on the site of the removed tumor and an xray on her lungs. The lungs are apparently where this line of cancer is typically found and if it came back where it would likely be.
All tests results came out clear. No sign of anything. To be expected but always nerve-racking! She will be seen again this coming January for a full body PET Scan. We are happy to have gone through our first successful scan and truly ready to try and put this behind us!
Post treatment Mark and I have been experiencing a bit of an after quake effect… as I like to think of it. We got through the worst in a composed manner and now as we have time to reflect it seems to hit a little bit harder. We now can make sense of some of the comments we used to receive.
“We can’t imagine what you are going through.”
“I don’t know how you are doing this.”
Looking back now I / we can’t either! It doesn’t seem real. But during, it is all too real which makes it something you manage. Goes to show you, don’t imagine. Don’t what-if. Just do if need be.
I didn’t love going back to Children’s Hospital. But along with the bad feelings when I walked in there were so many good memories. This was where Mila shocked us all and was running around making an escape attempt the morning after her surgery, where she had an entire muscle area removed. This was where miracles happened!
I also didn’t love walking back into the Jimmy Fund clinic. But immediately seeing all our old friendly faces, that believe it or not I have missed, was like a fun little reunion and an opportunity to catch up. I say it time and time again, they truly are the best!
So this last trip in was a back to reality moment. We have been having such a good time, getting back into our normal routine, spending outings with friends and other kids… living out of lock down. I also highly enjoy not having to ask another mom if their child has a cold or flu bug. Of course they do. They are kids living in New England during winter. Who doesn’t? So that is one awkward comment scratched off the list. Always a silver lining. 🙂
Anyway, good news, great results. The new norm will be checking off each appointment until we hit the 5 year mark.